Horrible news today


PDA






JR719
October 5, 2007, 03:08 AM
I have been a little busy lately doing house remodeling and have not been on the forum much. Now a really bad health issue has hit my family.

After a doc appt. today, my youngest daughter has been scheduled to see a pediatric cardiologist at Childrens in Oklahoma City. The earliest the appt. could be made is on the 31st of this month. She is a little upset she might miss trick or treating as we live about 2 hours away from the appt. address and have no idea when we'll make it home.

She is 6 years old and has been really energetic and outgoing until having a nasty virus recently. Please keep her in your thoughts on the 31st, she is too young for this.

This is not the greatest pic of her, but a good smile.



http://i3.photobucket.com/albums/y64/JR719/iphone.jpg


Thank you to all concerned.

If you enjoyed reading about "Horrible news today" here in TheHighRoad.org archive, you'll LOVE our community. Come join TheHighRoad.org today for the full version!
doberman
October 5, 2007, 03:17 AM
Done. My prayers are with you.

skeeter1
October 5, 2007, 03:18 AM
That is indeed a disappointment. She's a very pretty little girl, and I hope everything goes well. Having been through cancer treatment myself quite recently, I can tell you that the nurses will give her the best of care. I was also employed in a medical field for 26yrs, so I have a bit of experience. Healthcare insurers, OTOH, are pariahs just waiting to drop coverage for any reason and as fast as they can. Just happened to me.

I'll say a prayer for you.

JimmerJammerMrK
October 5, 2007, 03:21 AM
Sorry to hear about this. I hope everything goes well for you.

Scanr
October 5, 2007, 03:23 AM
Prayers are on the way.

JR719
October 5, 2007, 03:29 AM
Thank you very much.

I'm really not in a right frame of mind now to be posting anything, as you can understand. Tired, can't sleep, searching the internet for information.

RockyMtnTactical
October 5, 2007, 03:32 AM
I'm terribly sorry to hear this. God bless her, you, and your family. I wish you guys the best in this tough time.

annielulu
October 5, 2007, 03:48 AM
Prayers sent to the Great Physician. God bless.

stevek
October 5, 2007, 07:43 AM
Our prayers are with your family...

1911 guy
October 5, 2007, 08:04 AM
I'm a dad, too. I can only imagine all the things going through your head. Get some rest, your little girl needs you to lean on. Be strong enough for your family. Praying for you and your wife as well as your little girl.

Will5A1
October 5, 2007, 08:07 AM
Stay strong and have faith, prayers and thoughts sent your way.

brassdog
October 5, 2007, 08:19 AM
Will keep you and yours in my prayers. Stay strong for her as she looks for comfort.

JWarren
October 5, 2007, 08:35 AM
You, your family, and your daughter are in my prayers.


-- John

kymarkh
October 5, 2007, 08:59 AM
We will keep your family in my prayers.

waytoofunky
October 5, 2007, 09:02 AM
JR,

My prayers today are for your daughter, you, and your family. I can totally relate to your being blindsided -- do get some time off, and gather friends for support.

Rich K
October 5, 2007, 09:04 AM
Prayers sent for you, your daughter, and family. God Bless.

Gunbabe
October 5, 2007, 09:04 AM
My prayers are with her, you and the rest of your family. I have two little girls and my two year old (not even two at the time) was in the hospital with a "virus" twice last winter. I love how they can say virus and never give you a real answer. It's hard when your kids are sick but I'm sure she will get great care. Keep us posted.

skwab
October 5, 2007, 09:08 AM
Our prayers are with you guys JR - Stay strong and keep the faith.

jamz
October 5, 2007, 09:20 AM
Prayers and best wishes for you and your family.

Kimber1911_06238
October 5, 2007, 09:21 AM
Prayers and best wishes, hope she gets to do a bit of trick or treating too!!!

APC,inc
October 5, 2007, 09:23 AM
My thoughts and prayers are with you and your family. Have faith, the MD's at Children's Hospitals should have wing, the offer amazing care!

DWARREN123
October 5, 2007, 09:24 AM
Will keep the little one and the rest of your family in my thoughts and prayers.
Hope it turns out good.

Fastlane
October 5, 2007, 09:40 AM
Prayers for the young one and family. I sure she will be fine.

Biker
October 5, 2007, 09:50 AM
Luck to you and yours, Friend.

Biker

springmom
October 5, 2007, 09:52 AM
Prayers going up, for her and for you. Try webmd.com for medical info. The site itself isn't as good as it used to be, because it tries to be everything to everybody but it gives good links. Also try the Cleveland Clinic website (google to get it).

Springmom

TacoMalo
October 5, 2007, 09:59 AM
My family's prayers are with you and your family, stay positive and have faith that all will turn out well.

strat81
October 5, 2007, 10:13 AM
As my grandmother told me once: "Don't worry until there's something to worry about." That being said, play hooky from work and school for a day or two next week and spend it with her. Go shooting, go to the salon, get her a manicure, go to the zoo, go to the movies... whatever it is she likes to do.

My wife's brother and mother were both born with heart conditions. They're both alive, kicking, and healthy. Best wishes to you and her.

Marlin 45 carbine
October 5, 2007, 10:24 AM
It may be something having to do with the virus, the same thing happened to me few years back (and I'm 57), this after having a long-term low-grade infection(abcess tooth) and I was in bad shape for a while. I predict nothing to worry about, she's young and strong and resilent. A good MD will have her straightenend out shortly, and some time spent with the Great Physician is in order. God Bless.

thegriz
October 5, 2007, 10:36 AM
Keep your chin up and take it head on. There are a lot of us praying for you.

GunTech
October 5, 2007, 10:43 AM
Prayers sent.

I know what you are feeling. My 13 year old daughter was diagnosed with Grave's disease a couple of days ago, and we are scheduled to see a pediatric endocrinologist. Stay strong for your little girl. Best wishes for the best possible outcome.

Tod

Pax Jordana
October 5, 2007, 10:49 AM
We'll pray for her here. Would you give us her first name?


It's good that you worry for her - it means you're a caring parent. And I want nothing more than for you to come back here and feel like a heel because it turns out to be nothing. Remember, she's being referred to a specialist because it *might* be something, and the specialist is better equipped to say what it is.

Had the same fun experience myself about a year ago, regular physical for work, with a new MD because new job had new insurance. He looks at me kinna sideways and says, has anybody ever told you you've got a heart murmur?

One echocardiogram and a few calls to my old pediatrician revealed the new MD was being cautious with me as a new patient, the murmur was of a minor and nonthreatening type.

thereisnospoon
October 5, 2007, 10:53 AM
Prayers sent!

highfive
October 5, 2007, 11:13 AM
Prayers sent!!! Everything will be allright

Scorpiusdeus
October 5, 2007, 11:25 AM
Our thoughts and prayers are with you. My birthday is on the 31st so when I blow out the cakes I will wish that your daughter will be in and remain in good health.

Sheldon
October 5, 2007, 11:45 AM
Prayer sent. Wish her well for me.

Mr White
October 5, 2007, 01:24 PM
I'll keep her in my prayers.

koja48
October 5, 2007, 02:52 PM
God Bless both Her & your Family . . . you will all be in the grizzled old man's prayers every day . . . if God takes you to it, He WILL take you through it.

koja

benEzra
October 5, 2007, 03:20 PM
Prayers sent. Been there.

The state of pediatric cardiology in this country has come a long way in the last 20 years. She's in good hands.

PX15
October 5, 2007, 03:51 PM
Thoughts AND prayers for your child from our family.

Jesse & JoAnn Pomeroy

birddog
October 5, 2007, 03:55 PM
Thoughts and prayers from NY, too. Be strong, and be your daughter's advocate. Ask a LOT of questions, and demand answers that you can understand. Talk to the doctors directly as much as possible, and don't rely on what is filtered down through the nurses and interns. The medical profession is wonderful, but sometimes tend to forget they are dealing with entire families, not just a single patient. Best of luck to you and your child.

bumm
October 5, 2007, 03:58 PM
Hope everything goes well! You've got a lot of people pulling for her. Keep us posted!
Marty

koja48
October 5, 2007, 04:00 PM
I reckon I owe you more . . . 21 years ago, my Son was born with a "spontaneous, congenital, birth defect" which left Him with a left leg 60% shorter than the right, a missing finger on his left hand, and a forearm slightly smaller in diameter than his right. Docs said He wouldn't crawl, He wouldn't walk & probably wouldn't see 10 years. We were DEVASTATED! HOW COULD THIS HAPPEN TO HIM/US? All we heard, no matter where we went was: amputation, amputation, amputation. We prayed, we researched, we waited (unfortunately Mom "broke" and we divorced), and we PRAYED . . . we believed. 21 years later, our Son is whole & complete & if you didn't know, you wouldn't have a clue as to what He & we went through. As Jimmy Valvano said, "Don't give up . . . don't EVER give up." Call me if you need to talk . . . 509-783-5121 . . . call me collect if you're in a bind. There is NOTHING more precious than our Children . . . and "I've been there."

pinstripe
October 5, 2007, 04:10 PM
I have talked to the big guy, and he says for me to tell you that he's got you covered. Love heals all.

Keep your head up and your knees bent,sir, and you all will come out just fine on the other end.

James T Thomas
October 5, 2007, 05:07 PM
I'm somewhat skeptical about prayer requests over the internet, however, you have included her picture, and I can see she has a "brave" smile on.
I will be glad to ask for her, and the both of you also.

She is a blessing from GOD for you and your spouse, and it may just be that this is simply His way of reminding you that He would like to hear from you more often.

My children are adults now; but present a different set of concerns and worries. That will come to you...later.

With her strong and young heart, any valve problems are correctable, and electrical -ECG anomalies may or may not be serious. Though probably not.

Don't be frightened, GOD is gracious.

SoonerSP101
October 5, 2007, 05:14 PM
I'm really sorry to hear this news. I hope everything turns out good for her.

Geno
October 5, 2007, 05:22 PM
PM sent.

God bless.

Doc2005

Trope
October 6, 2007, 12:21 AM
As a parent, I know how hard it is to have anything happen to our own child. Our thoughts and prayers are with you.

fbodyninja
October 6, 2007, 12:47 AM
im really sorry to hear that man, i hope everything turns out ok

bfox
October 6, 2007, 12:59 AM
Prayers going out from Pennsylvania .

Hope all goes Well , Bill

Highpower1
October 6, 2007, 01:01 AM
Good thoughts and prayers sent your way. Keep the faith.

tpaw
October 6, 2007, 01:01 AM
You hurt inside but keep a smile on the outside for your wonderful daughter. Stay positive, and try to live as you would if nothing has happened. Although it may be hard, you are her strength. Medical science can work wonders today, have faith in their ability. With medical backgrounds in my family, don't hesitate to E-mail me for any questions that you may have. tw4768@aol.com....Onward and Upward!... God Bless her.....;)

Flak_Jakett
October 6, 2007, 02:35 AM
The most common cardiac pathologies for a child her age are murmers or inflamatory conditions of the endocardium or pericardium, usually precipitated by an infection of some kind. The endo and pericardium two of the three layers which makes up the heart. In fact nearly two thirds of the patients referred to pediatric cardiologists in my state were purely functional murmers that an estimated 70% of americans live with each day. 80% of the total number of pediatric patients required no interventions of any kind. And only 3% needed surgery.

Fortunately she has several factors working for her. Her age, a loving family, and the fact that she is still growing are a significant few of these. The signs and symptoms of these conditions can be quite troubling to parents, because they may lead you to believe the condition is quite worse than it actually is.

1) She is six: Her heart and circulatory system are still at 100% of elasticity. This means that conditions that would cause you or I great damage to our cardiovascular sytem, would create minor unpermanent disturbances to her.

2) She is still growing: The most common answer to the most common pediatric cardiac ailment is that she will grow out of it. If she is showing symptoms of decreased output, her body WILL notice that something needs to be done. It is vastly common that heart murmers decrease or completely disappear as the child grows, because the four valves of the heart are reenforced as the heart gets naturally larger with age.

3) She has a loving family: It is debatable, and there is no solid evidence based statistics on how stress effects healing, but it is widely excepted that an increase in stress worsens immune and other body systems. With a loving family and your support to decrease her stress and reassure her, her recover is just that much more likely.

I am not a doctor by any means. I am infact a graduating nursing student who happens to be digging very very deep into a cardiology section in his schooling. Basically I am trying to reassure you that the numbers are all in your favor. The advances in pediatic cardiology even in the last 2-3 years are amazing. I am a father too and I know how you are worrying right now. I hope I am not missing the mark tying to at least help you to feel at least a little better about your situation.

And as you requested my prayers belong to your family tonight.

10-Ring
October 6, 2007, 02:37 AM
Thoughts & prayers sent...best wishes to the family at this time

God bless

earthworm
October 6, 2007, 03:21 AM
Add my prayers.

Diamondback6
October 6, 2007, 03:44 AM
Uploading Prayermail to server:GOD as I type.

Gustav
October 6, 2007, 04:02 AM
Our thoughts and prayers go out to you and your little one along with your family at this difficult time.
Best of luck and God bless you all.

JR719
October 6, 2007, 05:07 AM
Thank you everyone for the kind words, information, and prayers.

Sorry I did not clarify what was going on. With this flu thing she had, she would start coughing, then fall back unresponsive for a few seconds. The coughing and being unresponsive has continued after the fever/flu and antibiotics were gone.

Doc first thought just coughing too much and not getting O2. Then, after more visits, he started asking my wife about little things we never really payed attention to in the past. Listened to her heart a few more times and decided to send her to a pediatric cardiologist with Childrens.

Doc said it COULD be a restricted valve in the heart. Possibly a valve is not growing as she grows etc. He did say it could just be the virus, but with oddities in the past.....

She has an appointment with Dr. Sperazzo (sp) at his/her office on the 31st. When I originally posted, all I heard was pediatric cardiologist, Childrens, heart. From what has sunken in today, this is a doc with Childrens and she will be seen at his/her office/clinic on NW 13 in Oklahoma City for the gamut of testing, not actually at Childrens hospital as I originally thought.

We were told to expect to be there for several hours depending on initial test findings. I'm really hoping after the first test we're told it was just a false alarm, but I'm not going to hold my breath.

We're going to take my oldest, as we won't be back when she gets home from school. We'll take their halloween costumes in the event time won't allow being home for them to run the neighborhood. I'm guessing we'll hit a mall or two to let them have some fun after a stressful day.

Thank you everyone for the encouragement and kind words. After reading some of the posts, this almost sounds minor to others health issues. I cannot stop dwelling on possible bad news, and don't even want to think about the possibility of surgery. I am already a nervouse wreck and cannot think of anything other than my daughters health.

I really appreciate the support for Haley, "bugs". Please keep "bugs" in your thoughts on the 31st. I'll update as I get information.

Thank you again,
JR

Robert Hairless
October 6, 2007, 07:06 AM
Beautiful child. They're all beautiful to me and I hate it when kids hurt. She (and you) have my prayers too.

barkingowl
October 6, 2007, 10:59 AM
http://img.villagephotos.com/p/2002-6/29571/thoughts.gif

Nhsport
October 6, 2007, 01:02 PM
Best wishes!
Take some comfort in the 3 or 4 week wait for an appointment.When specialists suddenly make time for you on short notice it is not a good sign.Trust me on this, I once was given an apointment with a cardiologist 10 minutes after a stress test ! Turned out ok (this was 8 years back) but things got real ugly , real fast!
Again , nothing but good thoughts from me for yours!

vis--vis
October 6, 2007, 01:09 PM
Praying for your daughter (and the rest of your fam). Keep us updated.

DrDavidM
October 6, 2007, 01:15 PM
Sorry to hear about this. I will also say a prayer for you.

mogunner
October 6, 2007, 03:45 PM
Prayers sent.

1911RjB
October 6, 2007, 03:50 PM
my prayers are with you! When i was your daughters age, i was going through the same thing it turned out i have an extremely rear blood disorder. i pray your daughter will be fine.

Hunter0924
October 6, 2007, 03:58 PM
My prayers are with your little girl and your family.

Black Knight
October 6, 2007, 09:17 PM
You have my family's prayers.

AndyC
October 6, 2007, 09:21 PM
All the best :)

Gunnerpalace
October 6, 2007, 09:36 PM
My prayers added.

oneeyesnipe
October 6, 2007, 09:46 PM
God bless your entire family and our family will pray for all of you until we hear good news.

308nato
October 6, 2007, 10:12 PM
Prayers sent here alsofor your little girl and famly.

68'chevelle
October 6, 2007, 10:16 PM
I'll have my church pray for her, as well as I.

RonC
October 6, 2007, 11:46 PM
I wish you the best with your daughter. Looking forward to reading good news about her.

Ron

Davo
October 6, 2007, 11:52 PM
Thoughts and Prayers...please keep us posted.

JR719
October 7, 2007, 12:32 AM
I'm really hoping after the appointment.... I can post on here feeling embarrassed because it was a false alarm. With all the thoughts and prayers I truly hope it happens.

I am a nervous wreck, as you can imagine. Today we went to a friends for a cookout. We spent loads of time running my friends 4 wheeler thru the woods and fields. She shot my buddies barn with about 200 paintballs, and wanted more.

Then after eating (smoked ribs, beef roast, sausage and hot dogs), she wanted more 4 wheeler.... So away we went! It was a good evening and we all had a break from stress. She was doped up, and fighting sleep, but she had a good time.

Keep your fingers crossed that I have a post on Halloween it was a false alarm. I'll give an update with any health turn or doctor appointment.

Thank you everyone.
JR

sfhogman
October 7, 2007, 12:43 AM
Prayers sent from San Francisco!
Please be mindful of what the good folks on the forum have said. You don't know yet that there's real trouble, and the fact that they've put the exam off 'till later in the month is a good thing. Enjoy your beautiful child, be sure and have some good times (seems like you've got that one down), let go and let God, as my grandmother used to say. Tomorrow can take care of itself.


Best,
Jeff

VARifleman
October 7, 2007, 12:58 AM
Good luck to all involved.

REPOMAN
October 8, 2007, 08:32 AM
Remember with GOD all things are possible.....Stay strong

REPOMAN
October 8, 2007, 08:34 AM
Remember with GOD all things are possible.....Stay strong :)

Sam Adams
October 8, 2007, 11:26 AM
My prayers are with you and your family, esp. your little girl. I have a 6 y.o. girl also, and I know how the thought of anything bad happening to her must just crush you.

Have faith in The Doctor that the problem isn't untreatable and the your doctors will be able to fix her problem, soon and permanently.

Notch
October 8, 2007, 03:12 PM
Your daughter and family are in my thoughts. Best of luck.

MKEITH
October 8, 2007, 09:52 PM
On behalf of all the fathers here on THR, my thoughts and prayers to you, man.
Ain't no more helpless feeling than when one of the little ones aren't well.

Gun Geezer
October 8, 2007, 11:48 PM
No, I am not being mean and not kidding.

Long story short, I had (emphasis on "had") a life threatening liver disease. On the transplant list with unknown chance of survival.

After 10-years of degrading liver condition and facing uncertain future and the Docs being all gloomy about my prognosis, I decided to trust God and seek his healing. I spent a week with wonderful Christian folks at RHEMA healing center in Tulsa, OK. On my 4th day there, I was healed in response to my prayer. Man, I felt it! I claimed it and now I am walking in perfect health. Not even a hint of liver problems. Praise God!

Faith and trust in God resulted in healing for me. I testify to it.

Go see the docs. They're good people. Let them tell you what to diagnosis is so you can know what to pray healing for!

IM me if you want more details on how the Word says you can receive God's healing for your daughter.

God healed me. He can heal anything.

Green Lantern
October 9, 2007, 12:15 AM
Your family is in my thoughts & prayers! :)

bearmgc
October 9, 2007, 12:18 AM
God bless your daughter and your family. Prayers on the way.

BlazingAngel01
October 9, 2007, 01:29 AM
good luck and prayers are with you

If you enjoyed reading about "Horrible news today" here in TheHighRoad.org archive, you'll LOVE our community. Come join TheHighRoad.org today for the full version!