Infidel Cowboy
Member
My boy is five as well. God bless and prayers for your family.
IC
IC
My 5 year old son has cancer :(
- Thread starter 223_AR
- Start date
- Status
My son is beating cancer
223,
My son, Jack, is almost two years off treatment for stage III nephroblastoma (wilm's tumor). During the heat of his battle, he showed me that he was tougher that I have been or will ever be. My entire family is praying for your son, you, and your family.
Also, don't forget to take care of yourself during his treatment and recovery.
I sent you a PM with contact information.
223,
My son, Jack, is almost two years off treatment for stage III nephroblastoma (wilm's tumor). During the heat of his battle, he showed me that he was tougher that I have been or will ever be. My entire family is praying for your son, you, and your family.
Also, don't forget to take care of yourself during his treatment and recovery.
I sent you a PM with contact information.
UPDATE
Braeden is doing good. He finished chemo and it looks like they might be able to remove the rest of the tumor with surgery. I will find out on Dec. 4th when the oncologist meets with the surgeon. FINGERS CROSSED. Also there have been many changes in our life in the past few months. Okay so here is the situation. A little over two months ago Braeden and his brother where taken away from there mom by DCFS and placed with me. I will not get into the particulars of what happened but there was some neglect that was happening. A while back there was a benefit that was held for him to help with everyday expenses (bills, food, etc.). This benefit was held by his moms sister. When it was over she created a new account for the money separate from the benefit account that was already open in his name. Now that they dont live with there mom she doesnt pay her bills and such anymore. Well now that they live with me things have been rough financially for me with the added expense's. My work is cutting hours due to the slow down from the economy and i have asked her for assistance with my food bill and normal bills. I recieved some help a few months back from her but she was very reluctant. Now things are piling up for me and i have asked for her assistance with the money that people donated for this very reason. And was told no. One reason is she wants to buy them christmas presents with this money. This is just fine. However i dont believe that christmas presents are a problem, they have many people that love them and they will be taken care of this year. But to let me drown in current financial situation while she has the funds that were donated to help in this situation i believe is wrong.
Braeden is doing good. He finished chemo and it looks like they might be able to remove the rest of the tumor with surgery. I will find out on Dec. 4th when the oncologist meets with the surgeon. FINGERS CROSSED. Also there have been many changes in our life in the past few months. Okay so here is the situation. A little over two months ago Braeden and his brother where taken away from there mom by DCFS and placed with me. I will not get into the particulars of what happened but there was some neglect that was happening. A while back there was a benefit that was held for him to help with everyday expenses (bills, food, etc.). This benefit was held by his moms sister. When it was over she created a new account for the money separate from the benefit account that was already open in his name. Now that they dont live with there mom she doesnt pay her bills and such anymore. Well now that they live with me things have been rough financially for me with the added expense's. My work is cutting hours due to the slow down from the economy and i have asked her for assistance with my food bill and normal bills. I recieved some help a few months back from her but she was very reluctant. Now things are piling up for me and i have asked for her assistance with the money that people donated for this very reason. And was told no. One reason is she wants to buy them christmas presents with this money. This is just fine. However i dont believe that christmas presents are a problem, they have many people that love them and they will be taken care of this year. But to let me drown in current financial situation while she has the funds that were donated to help in this situation i believe is wrong.
Just One Shot
Member
I'm fairly new to this forum so today is the first I've heard about your son.
Sounds like you need to get a lawyer to deal with the donations.
The update on your son is good news and proof that prayers do work.
I pray for a complete recovery for your son and peace for you and your family.
Sounds like you need to get a lawyer to deal with the donations.
The update on your son is good news and proof that prayers do work.
I pray for a complete recovery for your son and peace for you and your family.
benEzra
Moderator Emeritus
Thank you for the update. Prayers sent, both for your son and for you yourself.
If you haven't already, do look into Medicaid (regular or CAP), SSI disability, etc. for him. Those things can help immensely with medical bills and supplies that regular insurance turns their back on.
My 9-year-old has 22q11.2 deletion syndrome and major heart problems, and we would have gone under were it not for Medicaid and other programs. They can also help with respite care and such. The hospital probably has info on how to apply, if you haven't already.
Take care, and keep your head up. You'll be in our prayers.
If you haven't already, do look into Medicaid (regular or CAP), SSI disability, etc. for him. Those things can help immensely with medical bills and supplies that regular insurance turns their back on.
My 9-year-old has 22q11.2 deletion syndrome and major heart problems, and we would have gone under were it not for Medicaid and other programs. They can also help with respite care and such. The hospital probably has info on how to apply, if you haven't already.
Take care, and keep your head up. You'll be in our prayers.
KABA
Member
May God Bless your son and all of your family.My prayers are with and for you all.
I was diagnosed with Stage 4 cancer almost exactly five years ago. With God's mercy and the support of friends and family I survived that and so can your son.
I was diagnosed with Stage 4 cancer almost exactly five years ago. With God's mercy and the support of friends and family I survived that and so can your son.
bang_bang
Member
My aunt died at 4:15 this evening after a long battle of cancer. I'm really glad to hear that the little one is doing good.
Ignition Override
Member
bang bang:
My condolences.
223 AR: It looks like things are better. Hang in there.
My condolences.
223 AR: It looks like things are better. Hang in there.
223AR,
friend, I am fairly new here, but we have something greater in common than probably any other 2 people on this board. Circumstances are different, but I can say with certainty of heart that I know what it's like. Not just sympathize, but know it.
My son Dean was born in Sept 2005. When he was 4 1/2 weeks old, he stopped breathing one night after his bath. My wife and I both performed CPR on a 7lb baby until paramedics arrived. Dean was in and out for extended stays in the ICU a half dozen times before he was a year old, and there were 3 more CPR incidents in our home. Along the way we were told he could not be expected to ever walk, talk, etc. Choking spells were frequent, and seizures started around 9 months. But it wasn't until he was 13 months that they finally diagnosed it .. Rett's Syndrome. It's a genetic mutation in one gene that results in a progressive neurological degeneration that is devastating to girls (but they can survive 30-40 years with it), and terminal for boys. In fact few boys with Rett's are even born alive. The case study we were shown involved 24 boys found alive with the condition, and it lasted 2 years. At the end of the study, 2 were still alive and one was on permanent tracheostomy ventilation. We knew then our son was going to die, but we fought almost another year, keeping a 24 hr watch, before finally losing him in Aug 2007. He was 23mo. old, and died in our arms.
During all this I sold off guns, guitars, jewelry .. practically anything that could be turned into cash went out the door. I wrangled with my employer over family medical leave, went for months without pay, went totally broke and beyond, nearly lost the job a couple times, and slept no more than 3 hrs a day for about 19 months straight while working full time and watching the baby overnight. It is amazing one can cope with all this stress and be simultaneously living with the weight of your child's health being destroyed before your eyes, but I did, and I can see that you have persevered as well.
I saw this thread tonight and from page 1 expected to eventually see the worst ... praise God that your son looks like a survivor! Never neglect an opportunity to let him know you love him and that he's your hero. I know he is, because I know who my hero is. I'm just very happy for you that you still have your boy.
I know the world you've been in this last year. You know, as I do, that the world of people with 'normal' lives around you is oblivious to the existence you're living now. Even those with good intentions and a helping hand are clueless, but thank God for 'em anyway. I've told a lot of people ... before Dean came along I thought I was a grown man ... house, wife, kids, job ... but I was only a child. Dean made me a man. I'll bet your boy's done that for you, too. Hang in there. Drop me a pm anytime.
friend, I am fairly new here, but we have something greater in common than probably any other 2 people on this board. Circumstances are different, but I can say with certainty of heart that I know what it's like. Not just sympathize, but know it.
My son Dean was born in Sept 2005. When he was 4 1/2 weeks old, he stopped breathing one night after his bath. My wife and I both performed CPR on a 7lb baby until paramedics arrived. Dean was in and out for extended stays in the ICU a half dozen times before he was a year old, and there were 3 more CPR incidents in our home. Along the way we were told he could not be expected to ever walk, talk, etc. Choking spells were frequent, and seizures started around 9 months. But it wasn't until he was 13 months that they finally diagnosed it .. Rett's Syndrome. It's a genetic mutation in one gene that results in a progressive neurological degeneration that is devastating to girls (but they can survive 30-40 years with it), and terminal for boys. In fact few boys with Rett's are even born alive. The case study we were shown involved 24 boys found alive with the condition, and it lasted 2 years. At the end of the study, 2 were still alive and one was on permanent tracheostomy ventilation. We knew then our son was going to die, but we fought almost another year, keeping a 24 hr watch, before finally losing him in Aug 2007. He was 23mo. old, and died in our arms.
During all this I sold off guns, guitars, jewelry .. practically anything that could be turned into cash went out the door. I wrangled with my employer over family medical leave, went for months without pay, went totally broke and beyond, nearly lost the job a couple times, and slept no more than 3 hrs a day for about 19 months straight while working full time and watching the baby overnight. It is amazing one can cope with all this stress and be simultaneously living with the weight of your child's health being destroyed before your eyes, but I did, and I can see that you have persevered as well.
I saw this thread tonight and from page 1 expected to eventually see the worst ... praise God that your son looks like a survivor! Never neglect an opportunity to let him know you love him and that he's your hero. I know he is, because I know who my hero is. I'm just very happy for you that you still have your boy.
I know the world you've been in this last year. You know, as I do, that the world of people with 'normal' lives around you is oblivious to the existence you're living now. Even those with good intentions and a helping hand are clueless, but thank God for 'em anyway. I've told a lot of people ... before Dean came along I thought I was a grown man ... house, wife, kids, job ... but I was only a child. Dean made me a man. I'll bet your boy's done that for you, too. Hang in there. Drop me a pm anytime.
Bobarino
member
223,
i have the utmost empathy for your son and your family. i've been through it myself. i'm a leukemia survivor. diagnosed at age 19, now 32. the good part about being young is that incredible will to live. it makes all the difference in the world. Attitude is the most powerful force i found during chemo. you son sounds like has a positive and thus, survivalist one. good on him!!! having a strong family is right up there. without mine, i don't think i'd be here. keep fighting for your son. i know its tough as hell on you but you're doing the right thing. he won't realize it now, but he will one day discover that your will is just as big a part of why he is alive as his is. you're a good man. i wish you and your son the very, very best. keep your head up. there is no other cause more worthy than the one you are fighting for.
Bobby
i have the utmost empathy for your son and your family. i've been through it myself. i'm a leukemia survivor. diagnosed at age 19, now 32. the good part about being young is that incredible will to live. it makes all the difference in the world. Attitude is the most powerful force i found during chemo. you son sounds like has a positive and thus, survivalist one. good on him!!! having a strong family is right up there. without mine, i don't think i'd be here. keep fighting for your son. i know its tough as hell on you but you're doing the right thing. he won't realize it now, but he will one day discover that your will is just as big a part of why he is alive as his is. you're a good man. i wish you and your son the very, very best. keep your head up. there is no other cause more worthy than the one you are fighting for.
Bobby
Shung
Member
223, I really whish your little boy will soon be out of troubles ! I will think about him !
Hanafuda, your story brought me tears. What you and your wife did is just unbelievable. Your little was, and still his in good hands now !
Hanafuda, your story brought me tears. What you and your wife did is just unbelievable. Your little was, and still his in good hands now !
Bentonville
Member
- Joined
- Jun 18, 2006
- Messages
- 527
Hanafuda, +1 what Shung said. In the Bible, Matthew 18:3-10, Jesus speaks about how children are the examples for us who want to be with God eternally. Your son, and you, are examples to all who read your post. Thank you for sharing.
moi_self26
Member
Wow, he's such a handsome little man! I'm so sorry for all that you and your children are going through! Your son looks happy and strong though, no doubt because of you!! My mommy heart breaks for you and your son, I have a 3 year old daughter, and can't even begin to imagine how painful it must be to watch your child suffer and know that you can't make them better. You are obviously a great father, and your boys are so lucky to have you. I would recommend consulting legal aid, sometimes they will provide free legal services (if your ex-wife hasn't already sought their assistance).... and take her to court for child support (including the moneys sent for donation). It's just inconceivable to me how a mother could have such little regard for her babies. Good luck, you are most definitely in my prayers!!!
nerfsrule2
Member
My prayers are with you all,it is sooo tough to be so young and to have to fight this terrible disease.. May we gain courage and strength from his battle and send back to him love and kindness... I know a little about Cancer, Diagnosed with it 2 years ago, surgery.. just had an MRI with contrast to look for its return.. My mom had colon cancer; major surgery .... Now she just had some tests on speculation that it might be back....I never told my mom that I had Cancer as I take care of her...So all of the prayers for me and my mom are now being sent special delivery to your family and son.... Take care ... DS
nerfsrule2
Member
When it is my time to met with God, I will ask one thing.. Cancer may you go straight to Hell......
Thank you for everyone's support. Here is a picture take about a month ago.
Also i am selling these causekeeper bracelets. They are yellow and say 4 THE FIGHT on them. These are the childhood cancer ones. All the proceeds will go towards my sons christmas and birthday gifts this year. 5.00 covers the bracelet and shipping. If your interested in getting one you can email me at [email protected] that is also my paypal email. Thanks
Also i am selling these causekeeper bracelets. They are yellow and say 4 THE FIGHT on them. These are the childhood cancer ones. All the proceeds will go towards my sons christmas and birthday gifts this year. 5.00 covers the bracelet and shipping. If your interested in getting one you can email me at [email protected] that is also my paypal email. Thanks
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weedlayer
Member
223 AR,
My thoughts and prayers go out to you and your boys. I have an 8 and 10 year old and I can't imagine being in your shoes. It sounds like you are being the Daddy that those boys need right now. Stay strong and keep up the good work. They need you. Keep us all posted.
Weedlayer
My thoughts and prayers go out to you and your boys. I have an 8 and 10 year old and I can't imagine being in your shoes. It sounds like you are being the Daddy that those boys need right now. Stay strong and keep up the good work. They need you. Keep us all posted.
Weedlayer
Cajun
Member
223AR
I am new to this site so I am just lerning of your sons illness and want you to know that he is definitely in my prayers for a speedy recovery!! May God Bless you and your family!!
I am new to this site so I am just lerning of your sons illness and want you to know that he is definitely in my prayers for a speedy recovery!! May God Bless you and your family!!
Big Daddy Grim
Member
good luck and God Bless
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